1450 Crystal Lake Rd
Aspen, CO 81611
970.920.5836
info@aspencancer.org

Our mission is to optimize
the quality of life of cancer survivors.

Cancer Survivor (n): "any individual that has been diagnosed with cancer, from the time of discovery and for the balance of life"-- National Coalition for Cancer Survivorship.


 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

March 7, 2008

Dear Friends,

Over the last three years, the Cancer Survivor Center has been extremely active in becoming a leader in the area of exercise testing for cancer survivors. Since 2005, we have tested over 125 survivors and have continually been successful in improving their quality of life.

Because of this success, CSC has begun publishing research on the efficacy of our programs. In 2007, The Cancer Survivor Center submitted one complete research paper, “Physical Function of a Breast Cancer Survivor Followed for One Year: A Case Study” and submitted a second abstract, “Physiological Response to Graded Exercise Testing: A Comparison Between Cancer Survivors and Healthy Age-matched Controls,” which has been accepted for presentation. In addition, CSC presented this research at the American College of Sports Medicine’s 2007 national meeting in New Orleans and will be presenting the second paper at the 2008 meeting in Indianapolis.

It is our hope to continue providing cancer survivors with some of the nation’s leading cancer rehabilitation services. Because of the extent of the testing and assessment involved with providing these services, coupled with the financial devastation incurred by a cancer diagnosis, it is not possible for most cancer survivors to afford the services that have been proven to help them live a cancer free life. The cost for physical, nutritional, and mental health services for a survivor costs an average of $2,000. Through scholarships, CSC has been able to cover this cost for many individuals; however, as we continue to grow, more survivors will need financial assistance. In short…

THE CANCER SURVIVOR CENTER AND SURVIVORS ACROSS THE COUNTRY NEED YOUR HELP! PLEASE CONSIDER MAKING A TAX DEDUCTIBLE DONATION TODAY TO HELP A SURVIVOR REMAIN CANCER FREE!

Please Click Here To Donate!

Finally, as promised in each newsletter, we will be providing survivors with a personal training tip. Should you have any questions, comments, or concerns regarding the tip, please do not hesitate to contact one of our cancer exercise specialists! We hope you enjoy this edition’s tip!

TRAINING TIP #4

Breast Cancer treatment is often accompanied by surgery, chemotherapy, and radiation therapy. Following that treatment, many women opt for reconstructive surgery including implants and/or TRAM flap or latissimus flap reconstruction. A number of muscles are affected with these procedures (lattisimus dorsi, transverse and rectus abdominus, serratus anterior) that potentially lead to weakness on the affected side but also effect postural stability (e.g. your core strength).

At the Cancer Survivor Center, virtually all our survivors are given a simple exercise to address core stability at the beginning of their programs, the walking lunge.

There are a number of variations to the walking lunge and the most basic of them is often the most difficult. Starting with the feet together and hip width apart, step forward with one leg and bend the back knee toward the floor. Make sure the knee of the forward leg is directly above the foot. Bend the knee to 90 degrees (less if you are just starting out). From the bent position, press off the back leg and swing it forward to take the second ‘walking’ step. Proceed in a straight line for 20 total steps.

The exercise is designed as a lower body strength exercise, however, we observe many people doing this exercise incorrectly by ‘breaking’ at the waist. It is very important to stand tall, with the back upright, and the hips and shoulders square (it will appear as if you are standing at “attention” while doing the walking lunge component. This is the key to the exercise and increasing core stability, posture and overall balance.

In health,

Riggs


Resources

Your Friends For Life

Are you aware of a non-profit organization in Aspen whose sole purpose is to provide comfort and assistance to cancer survivors and their families? A recent article in the Valley Journal highlights the tremendous efforts of this organization, how they can help, and how you can contact them.

The Valley Journal 02/28/2008, Page A06
FEATURE FOCUS
Cancer support volunteers become friends for life

BY TRINA ORTEGA

The brochure that details Diane Welter’s volunteer support organization, Your Friends for Life, states: “We recognize that cancer is not a 9–5 disease, and we are available nights and weekends.” Welter remembers a Sunday phone call from a cancer patient who was trying to hide being distraught. The patient was surprised when Welter picked up the phone; she expected an answering machine. “I don’t have my wig on. I’m in my PJs,” the patient had said. Welter could tell in the patient’s voice that she needed a friend and demanded: “Stay in your PJs, don’t worry about your wig. I’m coming over right now.”

Anyone else may have not responded so readily, but Welter, a lifelong caregiver, didn’t hesitate. “I’m not a counselor and I don’t pretend to be a counselor, but sometimes they just need someone who understands,&# 8221; said Welter, the founder of Your Friends for Life. “Sometimes you need to be assured that you’re OK and that someone does care about you.”

Her nonprofit provides non-medical support to nurture and encourage cancer patients, caregivers and their family members during diagnosis, treatment and recovery from all types of cancer. In 2007, Friends offered assistance to 72 families and had 49 volunteers from Aspen to Rifle — numbers that have blown Welter away.

Aiming for 100 patients

She knew the demand was there and set her goal for 50 families but was admittedly surprised that she far exceeded that number. Now, the organization has turned a year and is aiming for 100 families. To do so, Welter is putting out a call for more volunteers.

Because of patient privacy laws, she is not allowed to make the initial contact with potential families; they must call her. However, word among patients is spreading and she’s getting more and more referrals from Valley View Hospital, Shaw Regional Cancer Center in Edwards, and the American Cancer Society in Grand Junction.

Friends might go grocery shopping, wheel the trash to the curb, do light gardening, cook a meal, take the dog for a walk, shovel snow, do laundry, rake leaves, pick up mail, or change sheets on a bed. “Things that might be real simple, but are huge for a patient,” Welter said. For instance, “they wake up in the morning and their walk is shoveled.”

Welter and her crew of volunteers will call families to check in and see if anything particular is needed. Sometimes they’ll just show up with flowers, a special lotion, a hug or a smile.

A friend of the family

On Valentine’s Day, Welter is bearing chocolates and gifts for Glenwood Springs resident Barbara Tanaka and her family.

Tanaka, who was featured in an August 2007 Valley Journal article, was diagnosed in May 2007 with breast cancer. She underwent chemotherapy in the fall, and as of the Feb. 14 visit, Tanaka was one-and-a-half weeks into her six-week treatment of radiation. The two women hug and Welter presents Tanaka with the treats. “She does this,” Tanaka says, explaining that at Christmas everyone got a present — the new grand-baby, Tanaka’s mom and husband — everyone. Welter reminds her: “You’re not the only one who gets cancer. Your kids, your family get it, too.” They hug again.

Welter asks Tanaka how the daily radiation at the Shaw center is going. Is the center open on President’s Day? And has she been getting rides? Tanaka, being a strong-willed woman, replies that she has been driving herself. There’s some gentle scolding, and Welter reminds Tanaka: “You should let your friends drive you, too. You’ve got to remember it’s good for friends to spend time with you and help take care of you.”

Although Friends volunteers cannot drive patients due to liability, they often meet them at appointments or sit with them while receiving treatment.

‘Hasn’t faded away

Tanaka’s journey has been a long one, and her doctor was forthright in saying it will be six months to a year after radiation before she’ll start to feel “normal” again. “The support is great. There is somebody else who knows what I am going through. At first it was like a funeral parlor here, there were so many flowers. … This is seven months later and Diane hasn’t faded away,” Tanaka said.

Like lifelong friends just sharing coffee and conversation, the two chat about Tanaka’s eldest son becoming a head chef. Welter knows the family members by name and was invited to the Tanaka Japanese holiday party.

Unrehearsed, Welter says: “So it’s fun. You really become …” “… part of the family,” Tanaka finishes.

Representative of a volunteer’s schedule, Welter has been making weekly visits to the Tanaka household since August, hanging out, sharing tips, taking Tanaka’s 81-year-old mom to lunch, and delivering meals. “It’s not that the husband can’t come home and do a meal. This gives him a night off. It gives him a break,” Welter said.

A break for kids, too

Friends also try to give the children some reprieve, too, by taking them to play mini golf, on a ride up the tram, to see a movie or treat them to pizza — any measure, Welter says, to help them feel a little bit “normal.”

Currently, the organization is supporting five families with children undergoing treatment in Denver, so Welter gets donated gas cards and restaurant gift certificates for the Denver area to help these families who have to set up “second homes” in the Front Range. (In addition to such donations, funds come from private donors and grants, such as those received from Carbondale Rotary and The Thrift Store in Aspen.) On the flip side, Welter has entire families that volunteer, as well. Welter recalled that one boy of a volunteer family picked out Popsicles at the grocery store and told the patient: “I eat these when my throat hurts.” Even if the kids are just there, playing in the yard, it can be enough to brighten a patient’s day, she added. “It’s a perfect chance to do something together. It teaches kids the value of helping,” she said.

With her professional experience in caregiving for more than 12 years and being the second of eight kids in her own family, Welter is an expert in the area of helping. “It’s always been natural — the nurturing. For me, it just seems like the really obvious thing to do.”

Part of her routine is checking in with patients after their treatment ends or after scans, during the stressful “limbo stage,” as she calls it, when a patient may no longer have the support of doctors and nurses. “In an ideal world, you would have six weeks of treatment, be healthy and happy and go back to work. But it doesn’t work that way,” said Welter, whose true hope is that a cure for cancer be found in a few years so she can shift her services to others in need.

Support through thick and thin

Like so many of the patients, Tanaka has been grateful for the TLC from Your Friends for Life and plans to pass it on once she completes her treatment. “For me, it’s about the support and not feeling left alone through all of this. They stick with you through thick and thin, all the way,” Tanaka said. “I’ve thought about it a lot and just thank God for Diane and her group. It’s huge. It’s like somebody else is on your journey with you and that makes it a lot easier. “I’m sure I’ll be helping in whatever way I can,” Tanaka tells Welter of her plans to help other patients. “I’d be happy to do that for you.” And spoken like a true caregiver, Welter responds: “Let’s just get you through the next month.”

To volunteer or receive support, contact Welter at 309-5293 or yourfriendsforlife@hotmail.com.